Sara Andrews

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Meaningful treatment outcomes for Sanfilippo syndrome: using a combination of focus groups and best-worst scaling to elicit and explore parents' priorities

State coordinator perceptions of linkages between newborn screening and early intervention

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

GM1-gangliosidosis: The caregivers’ assessments of symptom impact and most important symptoms to treat

American Society of Human Genetics (ASHG) Annual Meeting 2023

Food and non-food-related behavior across settings in children with Prader-Willi syndrome

New Dietary Guidelines for Young Children: What are the Implications for the Child and Adult Care Food Program (CACFP)?

Expert evaluation of strategies to modernize newborn screening in the United States

Understanding women veterans' preferences for peer support interventions to promote heart healthy behaviors: A qualitative study

Patient perceptions of a comprehensive telemedicine intervention to address persistent poorly controlled diabetes

Parents' opinions about using their children's EMR for research: A continuum of perspectives across three genetic groups

American Society for Nutrition | Nutrition 2023

Using a patient portal to increase enrollment in a newborn screening research study: Observational study

Women veterans' views on the role of peer support to improve heart health

Chronic disease management perspectives of colorectal cancer survivors using the Veterans Affairs healthcare system: A qualitative analysis

Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

Patient experiences with a phone-based cardiovascular risk reduction intervention: Are there differences between women and men?

Family caregiver use and value of support services in the VA Program of comprehensive assistance for family caregivers

Connecting caregivers to support: Lessons learned from the VA caregiver support program

Preparing newborn screening for the future: A collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system